2. It's called Ehler's Danlos Syndrome (EDS). I also have POTS which is a common side condition from having EDS.
3. EDS is commonly not diagnosed until way later than you would think. At the same time I am absolutely not a doctor. I was just recently diagnosed! Don't take anything about my experience as medical information. It is just my experience-and I fear a poorly communicated one at that. Talk to a trusted doctor, or at least do your own research from reputable sources.
4. Even if I really want to do something or go somewhere, there is only about a 30% chance I will actually be able to, so keep that in mind before you ask.